This September 7th a very meaningful event will take place, the third World Duchenne Awareness Day. It is on this specific day of the year, that the 79 exons in the dystrophic gene are represented and painfully remembered.
This uncommon disease, caused by a fatal genetic disorder, affects roughly 1 in every 3.500 male births. This means that more than a quarter million children around the globe suffer from this ruthless condition. However, hope is the last thing one ought to lose, and is therefore that all the action that will be taken on this very significant day might vitally help bring an end to Duchenne Muscular Dystrophy.
The first symptoms are a loss of the ability to walk during their early childhood and then a loss of the use of their upper limbs and the ability to breathe, which is the main cause of death of all those that have to bear the burden of this type of Muscular Dystrophy. Over the years, patients suffering from this disease lose their physical functions, ultimately dying as a consequence of this devastating illness. Many do not reach adulthood.
Verita Neuro will be one of the very many institutions and medical organisations along with numerous charities that will be raising awareness for all of those children and young adults living with Duchenne Muscular Dystrophy. Being a company that has for many years successfully treated patients that suffer from this condition, we appreciate fully the relevance of this day.
A part of that, we at Verita Neuro would like to invite all those reading these lines to take the necessary action, which will prove itself to be vital in spreading awareness of Duchenne Muscular Dystrophy. Patients are in desperate need for an efficient and result driven medical treatment such as the one that we provide at our partner hospital in Bangkok. Verita Neuro has helped many regain their quality of life and prolong their life spans for many years. It is therefore our main goal to help as many people as we can, by providing them with the highest quality Stem Cell Treatments in the market. We make sure that Duchenne patients benefit from every new development in the field of regenerative therapies as soon as possible.
Hence, your actions are vital to bringing an end to Duchenne. Take advantage of this day and make a donation, host a fundraising event, become an advocate for Stem Cell Treatments or connect with members of the community.
As a final word, Verita Neuro would like to thank you for supporting World Duchenne Awareness Day! Regardless of the obstacles and the adversities, a common, global voice will always resonate in the ears of millions, making the end of Duchenne an achievable goal.
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