Motor Neurone Disease Awareness Month takes place in June of every year. Its purpose is to help raise awareness of Motor Neurone Disease (MND), which is a group of diseases that affect the nerve cells, especially motor neurons in the brain and spinal cord. These neurons that control movement gradually fail to reach the muscles responsible for speaking, swallowing, and breathing, causing the muscles to gradually weaken, stiffen, and eventually stop function. MND usually affects people, and not limited to, over 50 years old and above. Although, life expectancy of MND patients is between two and five years, Stephen Hawking is one of the famous people diagnosed with MND, but lived until he was 76.
One of the most commonly known example of Motor Neurone Disease is Amyotrophic Lateral Sclerosis (ALS), or Lou Gehrig’s Disease, which is named after a baseball player who died from this disease in 1941.
MND Campaign #MyEyesSay Collage
The theme for MND Awareness this year is a continuation from last year’s motto: “But With Motor Neurone Disease, My Eyes Could Be All I Can Move.” As a part of the activities to raise awareness, patients and supporters are encouraged to share their experiences of themselves of their families affected with MND by sharing a message and taking a selfie of their eyes with the hashtag #MyEyesSay. Photos that have been selected will be placed on a big collage on #MyEyesSay website. Several ways to create a selfie can be found on the Awareness Day UK website.
Moreover, on June 21 every year, the International Alliance of ALS/MND Association has also been celebrating Global Day for MND patients,. The association not only aims to raise awareness of the disease by organizing various activities, but to find the underlying causes and treatment for this chronic disease.
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H/T: MND Association